This is effecting freedom of speech. It's also not allowing us to see all sides!! I don't know what the answer is!! But, I do know as a Veteran and US citizen I have the right to see and understand what's going on in our world!!It is getting like the Hilter regime!!
That's awful! There must be a way to get these doctors in trouble! That's outright up discrimnitaion! There has been at least one case where a patient successfully sued a clinic because they were being denied care because they were prescribed Suboxone...maybe you could cite that case to a lawyer and get them to help you..? I know it's very hard to get enough 'low pain' time to tackle something like this, or even find the motivation to deal with yet another aspect of our medical care when we're constant pain, but it was a case in Selma (I beleive) and I know I have it saved somewhere...if you're interested feel free to PM on FB messenger.
I've read your responses to others and relaize ypi're going to do more, so I'd like to offer nput for any future surveys. I also imagine it's a balancing act between writing a survey that adresses as many options as possible, while not becoming so long and tedious no one will want to fill it out. I greatly appreciaye all the work you do, especially since you're a CPP yourself, and hope that none of my comments come across as being critical of your efforts. In addition to needing a Worker's Comp selection, it would be nice if we could also specify whether or not the physician providing meds (if applicable) is the one who originally prescribed them or if they're 'just' the current provider. I've gone through several different providers and have seen both PCP & PM types and know I'm not the only one. Maybe this would need to be another survey on it's own, but I'd be interested in how many prescribers patients have seen to either try and get meds & been denied, or are now getting them but not enough to allow function, and if the patient left a previous provider because of being force tapered or denied. I used the "Private" insurance option, in place of Worker's Comp, and answered the questions as if they pertained to my current provider, but it took me 12 years to find my current PCP, who is one of the very few I've trusted in the past 16 years. Also, in the section that asks about dosages, I think it would be good to have a striahgt 90MME option, or else possibly change the wording to better reflect whether or not a patient is right at the CDC's 90MME reccommended dose, for example "0-89MME" , 90MME", then "Over 90MME-upto125MME" and so on. Thank you for all your hard work and I look forward to participating in new surveys and reading new articles (I finally verified my new email address and will now be recieving the newsletter again).
Thank you! Yes, where is the data from before pain patients started being labelled with OUD (possibly as a means to bill more) and after? I'd love to see the PMDP data utilized in a way that would show how many chronic pain patients are treated now, as opposed to the original figures given. I believe it would show thousands, if not millions, of pain patients removed/reduced from their vital medications and not the diversion we keep hearing about.
Sorry...but after fighting for 10 years with doctors knowing something was wrong and being dismissed and belittled I was diagnosed too late. Permanent damage had occurred. I speak up now and loudly if I have to. As a chronically ill person I have to advocate for myself.