It was always VERY important to define what was causing what. Did we really just throw every legitimate pain sufferer using opiates and their doctors to the wolves for a street fentanyl problem that neither have anything to do with? Who would do such a thing?
My OB I had for over 10 years was taken down by DEA and CA medical board. This Doctor treated the cases that no other OB would in this area of Mendocino County CA. He saved my life and many other patients. He dealt with very painful issues and persriped pain meds to many of us because we were suffering greatly. It took him 3 years to figure out my massive scare tissue damage while other Doctors just gave up. I'm so sad for him and the community he healed. Women have suffered seance he lost his licence. Stop going after good Doctors just to feed this false narrative! Medical boards need to protect Doctors. Yes there were pill mills but to many good Doctors have paid the price! I'm a pain patient from a crushed tailbone but no longer suffer the pain my OB fixed! Now he can no longer help women. This whole thing is a genocide of ppl. It's getting worse. I can only get a quarter of my pain meds from a pain clinic because Doctors are scared!
I always have to fight the stigma attached to Fibromyalgia diagnosis. It is a life filled with pain and it is just as much pain as any other kind of pain but I always get the we cant prescribe anything more than Lyrica or Gabapentin. I took pain medications that worked very well at controlling my pain for 20 yrs before my MD of 20 yrs retired. A life time of pain is an terrible and torturous sentence. I did nothing wrong and I feel like Fibromyalgia is discriminated against because primarily women suffer with it. No one should have to live a future of 20-30;yrs of untreated pain when 2 Tylenol # 4 can control their pain.
PA has recently had legislation introduced to limit the number of days pills that can be prescribed for pain. I have written the sponsoring legislators, my representatives and the governor to ask exceptions for chronic pain patients. I included the Krebs/SPACE study which showed all 108 pre screened patients given Opiods for a full year, subject to random urinalysis &PDMP checks, were clear of ANY signs of misuse at study's end, and recent BMC study of Dec 2018 of 500000 surgical patients given opiods post-op between 2006-2013. Only .6%showed signs of misuse. Quoted Nora Volkow of NIDA, and SAMHSA stats to show most non-medical users on DIVERTED pills NEVER Prescribed For Them, and that risk of addiction in properly screwed patients was low.
I was in pain management for over 35 years I was forced out due to an insurance issue then forced taken off my pain prescription which I was on same medication same dose for over 22 years I was not tapered
This is effecting freedom of speech. It's also not allowing us to see all sides!! I don't know what the answer is!! But, I do know as a Veteran and US citizen I have the right to see and understand what's going on in our world!!It is getting like the Hilter regime!!
That's awful! There must be a way to get these doctors in trouble! That's outright up discrimnitaion! There has been at least one case where a patient successfully sued a clinic because they were being denied care because they were prescribed Suboxone...maybe you could cite that case to a lawyer and get them to help you..? I know it's very hard to get enough 'low pain' time to tackle something like this, or even find the motivation to deal with yet another aspect of our medical care when we're constant pain, but it was a case in Selma (I beleive) and I know I have it saved somewhere...if you're interested feel free to PM on FB messenger.
I've read your responses to others and relaize ypi're going to do more, so I'd like to offer nput for any future surveys. I also imagine it's a balancing act between writing a survey that adresses as many options as possible, while not becoming so long and tedious no one will want to fill it out. I greatly appreciaye all the work you do, especially since you're a CPP yourself, and hope that none of my comments come across as being critical of your efforts. In addition to needing a Worker's Comp selection, it would be nice if we could also specify whether or not the physician providing meds (if applicable) is the one who originally prescribed them or if they're 'just' the current provider. I've gone through several different providers and have seen both PCP & PM types and know I'm not the only one. Maybe this would need to be another survey on it's own, but I'd be interested in how many prescribers patients have seen to either try and get meds & been denied, or are now getting them but not enough to allow function, and if the patient left a previous provider because of being force tapered or denied. I used the "Private" insurance option, in place of Worker's Comp, and answered the questions as if they pertained to my current provider, but it took me 12 years to find my current PCP, who is one of the very few I've trusted in the past 16 years. Also, in the section that asks about dosages, I think it would be good to have a striahgt 90MME option, or else possibly change the wording to better reflect whether or not a patient is right at the CDC's 90MME reccommended dose, for example "0-89MME" , 90MME", then "Over 90MME-upto125MME" and so on. Thank you for all your hard work and I look forward to participating in new surveys and reading new articles (I finally verified my new email address and will now be recieving the newsletter again).